
Infusions for a Future
For Johnathan, the fight against Niemann-Pick Disease is not just a battle for survival, but a quest to turn his adversity into a source of inspiration for others.
Niemann-Pick Disease, a rare genetic disorder, poses a formidable threat to Johnathan's life and well-being. But he refuses to succumb to despair. Instead, he smiles and enjoys the life he has.
One of the strategies Johnathan has embraced is a series of infusions, which have become a cornerstone of his treatment plan. These infusions provide a glimmer of hope, infusing his body with a lifeline that counters the insidious progression of the disease.
Spinal infusion number #229! Today our hero Dr.Kim is taking over the research so Johnathan and Marian can continue their infusions in LA!! Tearing up with gratefulness!! Today will be a long day but so worth it!!